Tiny Warrior - Jeg Threads of Heart Tee

  • $ 20.00
  • Save $ 7

Tiny Warrior - Jeg Threads of Heart Tee by @shopjumpingjack

Please read: Choose BOTH Size and Color to see if item is available. Not all styles are available in adult and kids sizes.

S I Z I N G  G U I D E :  All adult crew and v neck tees are unisex sizing and run big. For women: size down if you prefer a tight fitted look or stick with your regular size for a loose fit. Muscle tanks are true to size, racerback tanks are fitted- size up for a more flowy fit. Kids tees are also true to size. See size chart in last image.

"While on a family vacation to Disney World in November of 2017, we were left a voicemail telling us that our son, Jeg, age 4, screened positive for a rare and fatal genetic disease called Niemann Pick Type C (NPC). There is no cure or FDA approved treatments. We received the official diagnosis on December 15, 2017. NPC slowly steals their ability to walk, talk, swallow, seizures, gaze palsy, enlarged spleen and liver. Jeg has always met his developmental milestones but during a visit to his gastroenterologist was discovered to have an enlarged spleen. After almost a year of no explanation as to why, he was screened for this devastating disease. In addition to his spleen, he has a very small amount of vertical gaze palsy, awkward running gait, and a delayed cognitive response time. In addition to NPC, Jeg was diagnosed with Crohn's Disease in November 2017. Since diagnosis our family has realized the real meaning of life and we do not take one moment for granted. We have started a Bucket List and are on a mission to help create special memories for both our children. Our family has hope in a drug that Jeg receives under sedation every two weeks via spinal tap that has been show to slow the progression of this disease. Please help us in raising awareness for Niemann Pick Type C."

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